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The Tuskegee Syphilis Study: Medical Ethics & Race
Disability Series, #4 of 4. The Tuskegee Syphilis Study was an ethically problematic, to say the least, medical research project conducted in Alabama. Officially titled “The Effects of Untreated Syphilis in the Negro Male,” this government-sponsored research project was conducted by the United States Public Health Service in Macon County, Alabama, between 1932 and 1972. For four decades, researchers observed the progression of untreated syphilis in approximately 399 African American men without their informed consent. Many of the men thought they were being treated for “bad blood,” which had a variety of connotations. They were not aware that they were being actively blocked from receiving effective treatment, even after penicillin became the recognized standard of care for syphilis in the 1940s. Rather than viewing the study as an isolated event, we’ll see how the Tuskegee study fits into a broader framework of American medical and disability history and racial discrimination. Select Bibliography Jones, James H. Bad Blood: The Tuskegee Syphilis Experiment. (Simon and Schuster, 1993). Lederer, Susan. “Experimentation on Human Beings.” OAH Magazine of History, Vol. 19, No. 5, Medicine and History (Sep., 2005), pp. 20-22. Reverby, Susan Mokotoff. Examining Tuskegee: The Infamous Syphilis Study and Its Legacy. (University of North Carolina Press, 2009). Sharma, Alankaar. “Diseased Race, Racialized Disease: The Story of the Negro Project of American Social Hygiene Association Against the Backdrop of the Tuskegee Syphilis Experiment.” Journal of African American Studies, Vol. 14, No. 2 (June 2010), pp. 247-262. Learn more about your ad choices. Visit podcastchoices.com/adchoices
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49:12
Cripping Contagion: A Long History of Epidemics as Mass-Disabling Events
Disability Series. Episode #3 of 4. Since the advent of epidemiology (the study of infectious disease, its spread and prevention), humanists and scientists have been able to study mass-disabling events related to epidemic disease, especially prior to widespread vaccination. For example, the WHO has estimated that more than 20 million people who would otherwise be disabled are typically-abled today because of the poliomyelitis vaccine. The data from the pre-vaccine era is poor so it’s difficult to make such a precise claim but it’s still possible to look at historical “mass-disabling events” and to explore the ways that such events impacted society as a whole and disabled people specifically. That’s what we’re doing today. Find show notes and transcripts at www.digpodcast.org Learn more about your ad choices. Visit podcastchoices.com/adchoices
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1:01:20
The Section 504 Sit-In: The Protest that Demanded Civil Rights for Disabled Americans
Disability Series. Episode #2 of 4. In 1973, Richard Nixon signed the Rehabilitation Act, a bill intended to increasing hiring, extend rehabilitation services and increase assistance programs for Americans with disabilities. In the wake of the Civil Rights Act of 1964 and Voting Rights Act of 1965, politicians and activists discussed the bill in explicitly civil rights terms, arguing that as the federal government had protected the civil rights of Black Americans and women, it must also protect the rights of disabled people. While there had been other bills focused on rehabilitation and services before, the Rehabilitation Act stood out to disabled Americans for one reason: one sentence in Section 504 of the bill. While other bills had appropriated money for services or called for programs, they didn’t include a provision for enforcement – but Section 504 did exactly that. Disabled people saw an opportunity: Section 504 could radically change life for disabled people in the United States. And when the federal government failed to fully enforce Section 504 in the years after its passage, disabled people took matters into their own hands. Find show notes and transcripts at: www.digpodcast.org Learn more about your ad choices. Visit podcastchoices.com/adchoices
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1:12:33
Sexuality and Psychiatry
Disability Series, Episode #1 of 4. How and when scientists, doctors, and society started conceiving of the physical and emotional components of same-sex desire as a psychiatric condition of the mind? This was neither an ancient belief nor a postmodern (aka, post-1950) one, and it wasn’t an exclusively American phenomenon either. Rather, the classification of same-sex desire as a “disorder” had its roots in the foundations of psychiatry as a profession in the 19th century. Over the last 100+ years, that classification impacted individuals all across the world. You’ve heard of Sigmund Freud, whose work in the 1920s standardized a form of talk therapy that sought to interpret actions, thoughts, and desires through a particular lens of analysis. “Psychoanalysis,” though short-lived as a psychiatric practice, was certainly part of the longer-term framing of queerness and transness as “mental illness.” But Freud is just the tip of the iceberg. Today we’re digging into the history and relationship between psychiatry and sexuality; the scientific theories of sexuality that helped shape modern ideas about the relations between gender, genitals, desire, and identity; and the consequences of the medicalization of sexuality. Bibliography Adriaens, Pieter R., and Block, Andreas De. Of Maybugs and Men : A History and Philosophy of the Sciences of Homosexuality, University of Chicago Press, 2022. James E. Bennett and Chris Brickell, "Surveilling the Mind and Body: Medicalising and De-medicalising Homosexuality in 1970s New Zealand," Medical History 62, no. 2 (2018): 199-216. Ross Brooks, “Transforming Sexuality: The Medical Sources of Karl Heinrich Ulrichs (1825–95) and the Origins of the Theory of Bisexuality,” Journal of the History of Medicine and Allied Sciences, 67 (2010) 177–216. Maurice Casey, “‘I want to be to Ireland what Walt Whitman was to America’: Esotericism and Queer Sexuality in an Irish Social Circle, 1890s–1920s,” History Workshop Journal, 00 (2025), 1–22. Mian Chen, "Homo(sexual) socialist: Psychiatry and homosexuality in China in the Mao and early Deng eras," Gender & History 36 (2024): 657-672. Richard von Krafft-Ebing, Psychopathia Sexualis (1894) Harry Oosterhuis, Stepchildren of Nature (2000) John Stuart Miller, "Trip Away the Gay? LSD's Journey from Antihomosexual Psychiatry to Gay Liberationist Toy, 1955-1980," Journal of the History of Sexuality, Vol. 33, no. 2 (May 2024) Lamia Moghnieh, "The Broken Promise of Institutional Psychiatry: Sexuality, Women and Mental Illness in 1950s Lebanon," Culture, Medicine, and Psychiatry 47 (2023): 82-98 Learn more about your ad choices. Visit podcastchoices.com/adchoices
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57:34
Executive Orders, Dog Whistles, and the Lavender Scare
Crime & Punishment Episode #4 of 4. In the late 1940s and 1950s, alongside the better known “Red Scare” that targeted alleged internal political enemies - American Communists - the US government led a crusade against gay men and women in the military and civil service. During the “Lavender Scare,” thousands of people were fired or forced from their jobs, dishonorably discharged from the military, and denied positions in the US government because of their sexuality. And those policies were enforced for decades - through “liberal” administrations, and the federal decriminalization of same-sex sex in 2003 - with life-ruining, and life-ending consequences for tens of thousands of Americans. And since we’re basically reliving this awful period in history because Republicans believe that a time of queer persecution, women as second class citizens, and segregation and racism is America’s “great” era, we better know the history so we can know how to fight. Bibliography Allan Berube, Coming Out Under Fire: The History of Gay Men and Women in World War II (University of North Carolina Press, 2010). Julian Carter, The Heart of Whiteness: Normal Sexuality and Race in America, 1880–1940 (Duke University Press, 2007). Josh Howard, The Lavender Scare, (Alexander Street Films). John Howard, Men Like That: Southern Queer History, (University of Chicago Press, 1999). David K. Johnson, “The Lavender Scare: Gays and Lesbians in the Federal Civil Service,” PhD Diss, (Northwestern University, 2000). E. Patrick Johnson, Sweet Tea: Black Gay Men of the South (University of North Carolina Press, 2008) Elizabeth L. Kennedy and Madeline Davis, Boots of Leather, Slippers of Gold: The History of a Lesbian Community (Routledge, 1993). Anna Lvovsky, Vice Patrol: Cops, Courts, and the Struggle over Urban Gay Life before Stonewall, (University of Chicago Press, 2021). Learn more about your ad choices. Visit podcastchoices.com/adchoices
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1:04:10