The POTScast

• Alici’a, a nauseous, resilient, animal-lover

  Alici'a has spent a LOT of time hugging garbage pails, due to extreme nausea, and she did not get the support she hoped from her school or  insurance company, but that didn't keep her from figuring out how to graduate high school, get accepted to college with needed accomodations, and feel she has become a better person for the challenges. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at [email protected]! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest:

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  32:34
• Cardiologist Alexis Cutchins on MCAS, POTS, venous outflow/pelvic congestion syndromes, MALS and more with Dr. Tania Dempsey on Mast Cell Matters

  This is an excellent discussion for patients and practitioners alike who are interested in the connections between MCAS, POTS, venous compression, pelvic venous disorder, and MALS.  Cardiologist Dr. Cutchins and Dr. Tania Dempsey share tons of information plus their latest thinking on how to treat patients with these complex presentations, including an in-depth conversation about how MCAS patients are faring with stenting procedures for venous compressions. You can follow Dr. Cutchins on Instagram at @drcutchins Dr. Cutchins’s website is here. Dr. Dempey’s website is here.  If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at [email protected]! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest:

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  53:12
• Caitlyn wrote a book!

  Caitlyn was a 4th grade teacher, mom, group fitness instructor and general ball of energy until she got Mononucleosis.  Faced with all sorts of challenges, including losing relationships because her health was "too much", what did she do?  She wrote.  And it evolved into a book about her experiences and included thoughtful questions for readers, which Caitlyn wishes she's asked herself sooner.  Above all, she wants other patients not feel alone.  You can find her book here starting June 24th, 2025. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at [email protected]! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/ Medical Disclaimer: The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from the use of this podcast.

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  36:42
• Biological Sex Differences in POTS with Marie-Claire Seeley, RN, PhD

  Dr. Marie-Claire Seeley explains new published findings from the Australian POTS Registry, looking at sex differences in symptoms, care seeking, diagnostic delay, and other parts of the patient journey.  You can read the published article here and learn more about the Australian POTS Foundation here.  If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production costs  https://www.standinguptopots.org/donate Tell us what you think of The POTScast or send us your idea at [email protected]! Find out more about Standing Up to POTS! Check us out on our Website: www.standinguptopots.org Facebook: https://www.facebook.com/standinguptopots/ Instagram: https://www.instagram.com/standinguptopots/ Twitter: https://twitter.com/POTSActivist Pintrest: https://www.pinterest.com/TheStandingUpToPOTS/  

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  17:43
• Invitation to DysCourse, presented by The Dysautonomia Project

  The DysCourse event is presented by The Dysautonomia Project.  It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers.  Hope to see you there!

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  9:13

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